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Please support the Trek for Tilly and help raise awareness of Spinal Muscular Atrophy (SMA)

Charity / Mon 4th Apr 2022 am30 09:55am

ON May 28th 2022 Tilly’s family and friends will be embarking on a familiar journey from Great Ormond Street Hospital, London to their home in Sawbridgeworth, some 30 miles, but this time with a twist.

Instead of their usual drive for hospital treatments they will be walking the route to raise awareness and funds for Tilly and her condition Spinal Muscular Atrophy (SMA).

Tilly is five years old and has the muscle wasting condition SMA – Type 1. This means her muscles are extremely weak and do not function properly. She, cannot walk, sit without support or swallow. The disease also affects her respiratory muscles resulting in the use of a ventilator to support her breathing at night. 

The full article on her gofundme page is below.

https://www.gofundme.com/f/trek-for-tilly-raising-awareness-for-sma?qid=34c34c697a4598d6931f8ca157ced11b

Please give whatever you can to support Tilly.

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