IPSEN Ltd., in partnership with Prostate Cancer Research and Tackle Prostate Cancer, is launching a new campaign, ‘Let’s Talk About the Hard Things’ to break down the taboos surrounding the side effects of prostate cancer treatment and encourage men to talk about their experiences with friends, family and healthcare professionals.New research, commissioned by Ipsen, surveyed over 350 men with prostate cancer and found the following:
Erectile dysfunction is one of the most common side effects, affecting 86% of men, followed by loss of libido (79%). Of those who experienced a loss of libido, almost half (42%) said their sex drive had “completely diminished” as a result.
Almost three quarters (73%) of those surveyed suffer with incontinence, with 61% saying it affected their quality of life.
These side effects can lead to a loss of confidence and feeling emasculated, and over a quarter of men (26%) said changes associated with their physicality have directly affected their mental health.
Despite this, men feel uncomfortable talking about their side effects and mental health to the people they have the closest personal relationships to, with only 2% feeling most comfortable discussing the topic with family and even fewer (1%) with friends.
Key reasons for avoiding conversation included: feeling others would have a lack of understanding; peer pressure to appear to have a healthy sex life and / or health in general; and feeling as though the problem is ‘left for you to sort out yourself.’David James, Head of Patient Projects at Prostate Cancer Research, comments: “This research is an important reminder of the toll that prostate cancer can have on an individual’s physical and mental health. We want everyone to feel able to speak about the effects of their treatment without fear of judgement. We all have a part to play in normalising these discussions and banishing these taboos. It also emphasises how important ongoing research is in making vital advances in the treatment and care of prostate cancer, informed by the lived experiences of the people it affects, ensuring fewer side effects and better quality of life – it is only through research that we can achieve these goals.”
Ken Mastris, Chair at Tackle Prostate Cancer, comments: “From my own experience of living with prostate cancer, and the many conversations I have had at my support group, I know that many men undergoing treatment for prostate cancer experience unwanted side effects, which can affect their sex life and the way we feel about ourselves. These side effects can be damaging to mental health, but talking to someone – be that a partner, support group, friend, or a healthcare professional – can help to relieve some of the embarrassment and make the experience less isolating. I know I found, and many men find these conversations difficult to have, which is why this campaign aims to help break down the taboos around ‘hard topics’ and help more people open up.”
The research also found that two thirds (69%) of men feel speaking to other men living with prostate cancer, or having their friends and family understand how they feel, would help them discuss some of
Dr Hilary Jones, TV doctor, comments: “I want to reassure anyone with prostate cancer that healthcare professionals are here to help: no topic is off limits – we’ve heard it all before! Nearly one third of men (31%) surveyed said they were not confident that their healthcare professional provided enough information about the specific side effects associated with the therapy they’d been prescribed. While doctors may need to do more, I’d also encourage patients to ask questions and use the time with their consultant to find out as much as possible.”
Prostate cancer treatment can cause side effects that are embarrassing and difficult to share, but by talking with partners, family, friends and your healthcare professional, it can be easier to cope with them. Visit www.pcr.org.uk/hard-things to watch the ‘Let’s Talk About the Hard Things’ videos and find out where you can seek support.
For anyone with prostate cancer issue they’d like to talk about, contact Tackle Prostate Cancer by calling its free National Helpline on 0800 035 5302 or emailing [email protected]