1 in 3 children with epilepsy have uncontrollable seizures
Health / Tue 20th May 2025 at 03:08pm
FOR 17-year-old Meadow, uncontrollable seizures meant she could have hundreds in a day.
Diagnosed just before her tenth birthday, Meadow’s mum Louise describes the ‘horrific’ impact of constant seizures and the journey to find anti-seizure medications that would work for her daughter.
Meadow said ‘I often say I feel like a guinea pig because I’ve tried about 10 different medications to try to stop my seizures. Every time we talk about trying a new medication, I’m scared about what it will do to me.’
Mum, Louise explains: ‘my daughter, Meadow, tried anti-seizure medications but her seizures were just building and building. She‘s had some horrific experiences, primarily from drug side effects. I’ve never felt so scared in all my life. Scared and very, very lonely.
1 in 3 children with epilepsy like Meadow have seizures that can’t be controlled by medication. Seizures can have serious health risks and a huge impact on quality of life.
As National Epilepsy Week approaches (19-25 May) Young Epilepsy has launched a fundraising appeal to support urgent progress into targeted epilepsy research in order to improve diagnosis and treatment options for children and young people living with the condition.
Help Fund Epilepsy Research | Control Seizures
Right now, in the UK, we don’t know why some children develop epilepsy and why some children lose their lives to it. Yet there’s a significant underfunding of research into epilepsy compared with other conditions.
Meadow was just 10 years old when she first noticed strange symptoms—sudden bursts of emotion, confusion, and the unsettling feeling that the floor was shifting beneath her feet. Initially, her mum, Louise dismissed these as odd but harmless, until the day Meadow experienced a severe seizure.
Despite the obstacles, Meadow has shown incredible courage. She has faced setbacks, including the traumatic side effects of her medication impacting her GCSEs, but she remains determined to not let epilepsy define her. “I want to become a dance teacher one day,” she shares. “I want to show other kids with epilepsy that they can still chase their dreams.”
Young Epilepsy provides a host of information and support for young people, families, clinicians and more on their website www.youngepilepsy.org.uk
Adrienne
2025-05-20 19:17:14
Epilepsy is basically an excess of electrical current that builds upamd as it has nowhere to flow from whatever is blocking it .It overloads. This causing a fit or seizured Sometimes it is caused by crossed vessels I'n the brain.There by having the above effect. I wonder if .education is the solution. Perhaps some sort of hat that can absorb the excess current. I know you can get battery dischargers. Perhaps an electrician may hold the answer.
DavidCraven
2025-05-21 09:34:11
If this is a temporal lobe epilepsy, which I have had for over fifty years, and drugs would not stop it you need to talk to specialist epilepsy neurology. I had brain surgery over twenty years ago and after an initial improvement it has gradually got more progressive with age, and you just have to keep up with the the latest all the time. It looks like I have had systemic lupus erythematosis for a long time and I am awaiting to see if inflammation has been the cause of problems.
Adrienne
2025-05-22 06:59:38
Well after a few spelling mistakes.and a possible diagnosis (above).If it is inflamed perhaps cold packs may help. Also try to keep away from nylon products as these produce static electricity. You are a very brave person. Sorry about spelling mistakes.I meant to say that the future research in episode of fits for people that can't take medication anymore may require a conduit that can absorb the excess electrical charge and re route it to a re chargeable battery. Or degaussing technology they use it for computers,or some sort of earth.Or a discharger,like they have on battery chargers. My brother had brain problems and the scar tissue caused problems.But that was a long time ago. Even though brain surgery has took a giant leap with stents etc. The medication as you have found out may not be for you . Anybody out there to help this young lady. She could do with some more ideas.x I expect but don't know that she may have already seen .Neuro . Don't let epilepsy define you sweetie. Disabled people are tough. You have to be because the world is tough to But there are some great people out here too. That don't define you and let you be the person you need to be. You my sweetheart don't have to prove anything. You are already,in my books an incredible person. Be strong.hugs.xx
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